The Measurement to understand Reclassification of Disease of Cabarrus/Kannapolis (MURDOCK) Registry now includes an online system integrated into the Registry in February 2014 that allows participants to complete their visit questionnaires online. The system is designed to assist the office staff with study management activities by increasing the various options for form completion, heightening registry enrollment, and reducing paper processing.
The new system distributes automated notices to participants to remind them to submit their forms using the online system prior to their enrollment visit, with email notification to study staff when a form is submitted. During a participant enrollment visit, staff can make changes with the participant’s approval. The forms can also be printed by participants if enrollment will take place at one of the study sites that does not have an internet connection.
The online system was a major undertaking, built from the ground up. The MURDOCK home page accessed by participants shows the completion status of their forms. They can manage their account information, and in the future will be able to complete follow-up forms online. The controlled release is currently in a 30-day pilot phase to identify any issues or enhancements that are needed prior to a full-scale release.
Development of the system was led by Julie Frund, DTMI. Workflows and revised processes for the study staff were facilitated by Kimberly Ellis, Kannapolis Clinical Data Specialist. Because of the high visibility and use by the general public, a usability study was conducted last summer to improve the interface. The team involved with the usability study included Constance Johnson, PhD, MS, RN, Duke School of Nursing, Michelle Smerek, Kannapolis, and Anita Walden, DTMI.